Karyopharm Therapeutics Inc. (“Karyopharm”) respects the privacy of visitors to our website, and recognizes your need for appropriate protection and management of the personally identifiable information you share with us.
Data Collection: Karyopharm only collects personally identifiable data (such as your name, address, telephone number or email address) when you voluntarily submit it to Karyopharm. This information may be used by Karyopharm personnel as a means to contact you to obtain more information, to improve this website, or to provide you with information that you have requested or additional information which Karyopharm believes may be of interest to you. The data will not be transferred outside Karyopharm without your prior consent, but may be used within Karyopharm or by a company acting as an agent of Karyopharm for processing and mailing purposes. Karyopharm may also use this information within the company for performing marketing studies or for other commercial purposes for which it may receive compensation.
Karyopharm may maintain the data collected in an electronic database of voluntarily submitted personally identifiable information. Karyopharm and its agents may exchange such information with each other or with you over the Internet or intranet systems for the purposes of carrying out the activities described above.
While Karyopharm makes every reasonable effort to protect the information collected through this website, please be aware that there is always some risk involved when submitting data over the Internet. We cannot guarantee that our website is 100% safe from illegal tampering or “hacking.” Any data transmitted over the Internet may be at risk; however, once it is received at Karyopharm and entered into its database, it has the same protection that Karyopharm extends to its own confidential information.
We track the total number of visitors to our website, the number of visitors to each page of the website, and the domain names of our visitors’ Internet service providers. No personally identifiable information is gathered in this process.
Updating Your Information: If at any time you wish to stop receiving emails or other communications from us, or if you have submitted personally identifiable information through our website and would like to have that information deleted from our records, please notify us through our Contact Form. You may also request access to personal data about you that Karyopharm holds and you may have the opportunity to request a correction or amendment to your personal data by contacting us through our Contact Form
Children’s Policy: We are committed to protecting the privacy of children. Our website is not intended for or designed to attract children under the age of 13. As noted above, we do not collect personally identifiable information unless you provide it to us – including an individual’s age.
If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, please contact webmaster through our Contact Form
EU-US PRIVACY SHIELD POLICY
Karyopharm Therapeutics Inc. (“Karyopharm” or “Company”) complies with the EU-US Privacy Shield Framework (the “Privacy Shield”) as set forth by the US Department of Commerce regarding the processing of personally identifiable information (“Personal Data”) transferred from the European Union (“EU”) to the US (for these purposes, reference to the EU also includes the European Economic Area countries of Iceland, Liechtenstein and Norway). Karyopharm has certified that it adheres to the Privacy Shield Principles of Notice, Choice, Accountability for Onward Transfer, Security, Data Integrity and Purpose Limitation, Access, and Recourse, Enforcement and Liability (“Privacy Shield Principles”). If there is any conflict between the policies in this EU-US Privacy Shield policy (“Policy”) and the Privacy Shield Principles, the Privacy Shield Principles shall govern. To learn more about the Privacy Shield program, and to view our certification page and a full list of self-certified companies, please visit https://www.privacyshield.gov/.
Scope: This Policy applies to Personal Data other than human resources (“HR”) personal data, that is received by Karyopharm in the US from the EU (For further information about Personal Data covered by this Policy, please see section “Types of Personal Data Collected” below.). Karyopharm commits to comply with the Privacy Shield Principles in respect of such Personal Data.
Types of Personal Data Collected: “Personal Data” is any information that can be used to identify an individual that is received from the EU, and is recorded in any form. Personal Data includes Sensitive Data. “Sensitive Data” is Personal Data that specifies medical or health conditions, racial or ethnic origin, political opinions, religious or philosophical beliefs, trade union membership or information specifying the sex life of the individual.
We may collect the following types of Personal Data: Personal Data pertaining to our vendors, contractors and consultants as well as clinical research participants, study investigators and their staff, medical and healthcare professionals and pharmaceutical industry experts and opinion leaders. Personal Data may include full name, address, telephone or mobile number, business and home contact details including e-mail addresses, health information and demographic information, as well as other Personal Data that you voluntarily provide to us, such as when you contact us with inquiries. Personal Data may further include any information that identifies an individual, but does not include information that has been encoded, encrypted, or otherwise anonymized.
Purposes of Data Processing: Personal Data that may be collected will be used for the purpose of supporting Karyopharm’s business activities related to the development of drug candidates for the treatment of diseases, including performing clinical research or programs and for maintaining and improving company internal systems.
PRIVACY SHIELD PRINCIPLES
Notice: This Policy provides notice of the Personal Data collected and transferred under the Privacy Shield, including its use, and handling, and how you may exercise your Privacy Shield rights. This Policy also provides information about other Privacy Shield principles that are set forth below.
Choice: You may tell us not to disclose (“opt out”) your Personal Data: (a) to third parties, except when disclosure is made to a third party that is acting as an agent to perform task(s) on our behalf and under our instructions; or (b) if it will be used for a purpose that is materially different from the purpose for which it was originally collected or that you authorized. You may contact Karyopharm’s Associate General Counsel at email@example.com to exercise your opt out preferences. We will not collect or use your Sensitive Data unless you provide your affirmative express consent (opt in).
Accountability for Onward Transfers: Karyopharm may occasionally transfer Personal Data to a limited number of third-party contractors, service providers and other businesses involved in the normal operations of our business, for example, contract research organizations (CROs) or other businesses that are involved in clinical study management and drug development as is commonly done in our industry to assist us in meeting business operation needs and to perform certain services and functions on our behalf and under our instructions. These parties may access, process or store Personal Data in the course of performing their duties to Karyopharm. We maintain contracts with these providers, which restricts their access, use and disclosure of Personal Data, solely to meet their contractual obligations in the performance of the specific functions described above.
Karyopharm may be required to disclose Personal Data to the extent required to meet a legal obligation, including national security or law enforcement obligations and applicable law, rule, order, or regulation.
We may also disclose Personal Data to other corporate entities in case of corporate sale, merger, reorganization, financing due diligence, dissolution or similar event.
Security: Karyopharm maintains reasonable and appropriate security measures to protect Personal Data from loss, misuse, unauthorized access, disclosure, alteration or destruction in light of the risks inherent in processing this information.
Data Integrity and Purpose Limitation: We will take reasonable steps to ensure that Personal Data is reliable for its intended use, accurate, complete and current. We will adhere to the Privacy Shield principles for as long as we retain Personal Data about you and we will retain data in a form identifying or making identifiable you only for as long as it serves a purpose of the data processing.
Access: You have certain rights to access, correct, amend, or delete Personal Data where it is inaccurate, or has been processed in violation of the Privacy Shield Principles. Please address your requests to the following email address: firstname.lastname@example.org. We will make good faith efforts to accommodate these requests within a reasonable time frame.
Recourse, Enforcement, Liability: In compliance with the Privacy Shield Principles, Karyopharm commits to resolve complaints about our processing of your Personal Data. Individuals in the EU with inquiries or complaints regarding this Policy should first contact Karyopharm at: email@example.com or by regular mail addressed to:
Karyopharm Therapeutics Inc.
Attn: Associate General Counsel
85 Wells Ave., 2nd floor
Newton, MA 02459
Any inquiries or complaints can also be addressed to our subsidiary located in Germany, by regular mail sent to:
Karyopharm Europe GmbH
Attn: Managing Director
Karyopharm has further committed to refer unresolved privacy complaints under the Privacy Shield Principles to the International Centre for Dispute Resolution®, the international division of the American Arbitration Association, a not-for-profit alternative dispute resolutions organization located in the United States. If you do not receive timely acknowledgment of your complaint, or if your complaint is not satisfactorily addressed, please visit http://go.adr.org/privacyshield for more information and to file a complaint.
Please note that if your complaint is not resolved through these channels, under limited circumstances, a binding arbitration option may be available before a Privacy Shield Panel. For additional information, please visit: https://www.privacyshield.gov/article?id=ANNEX-I-introduction.
With respect to Personal Data received or transferred pursuant to the Privacy Shield, Karyopharm is subject to the investigatory and enforcement powers of the Federal Trade Commission.
Karyopharm remains responsible and liable under the Privacy Shield Principles if third-party agents that it may engage to process Personal Data on its behalf do so in a manner inconsistent with the Privacy Shield Principles, unless Karyopharm proves that it is not responsible for the event giving rise to the damage.
Changes to the Policy: We reserve the right to amend this Policy from time to time consistent with the Privacy Shield’s requirements.
Effective Date: November 4, 2016